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Oct 21st, 2004: We are all getting ready for tomorrow night's Butterfly Ball. Thanks to all of you, this special event is a sell-out, with a waiting list! We are already booking next year's event--we will provide details shortly!

Also watch Newsday for Ed Lowes' article on Grace. It should be published very soon. Miracles are happening!

Oct 19th, 2004: Hope you saw Grace's pictures in the NY Daily News, Mid-town Messenger, and Smithtown News. Also, Get ready: our Grace is scheduled to be on Primetime (TV), date to be announced. God's blessings on everyone; this journey is comforted by your support.

Princess Grace can now eat her pasta and chicken thanks to Dr. Azizkhan and all the staff in Cincinnatti. Possible further surgery for contractures in her hand and foot. Thanks for all your help and support.

Keep the prayers coming--we stay open for miracles!!! Wear your butterflies, spread the word of this tragic disease and pray for a cure!

Hope to see you at the Buttefly Ball this Friday--thanks for your tremendous support of this important event.

Sep 25th, 2004: Lots of recent news! First, we would like to thank Surfside 3 Marina for taking Grace and her family on a boat ride on Saturday, Sep 25th.

Next big news: everyone should tune into the NY Yankees Game broadcast on WCBS AM radio, 880 on your dial, this Sunday, Sep 26th, 2004 to hear an interview with Grace's mom. The game starts at 2:05 PM, and the pre-game show starts at 1:30 PM. So please listen in...

Keep Grace and family in your prayers as they fly to Cincinnatti on Tuesday, Sep 28th, 2004. On Wednesday, Grace will have a barium study completed and Thursday she will have surgery to alleviate webbing and scarring in her esophagus so she can enjoy her favorite pasta. If all goes well, Grace will be home by Saturday night, Oct 2nd, 2004.

We continue to appreciate all your thoughts and prayers. Thanks to all of you who have supported the Butterfly Ball in October.The response to the ball has been overwhelming!

Sep 5th, 2004: BIG NEWS! A major fundraiser is coming--October 22, 2004--The Butterfly Ball!!!! This dinner will help to raise funds for Grace and EB Research. It will be held at the Huntington Town House, Huntington, NY. The cost is $75.00 per person: tables of 12 are available. Also, if you would like to place a Journal ad, please press the link here. We really need your support with tax-deductible, journal ads! Journal adds are needed and most welcome. Charge cards are accepted. Also, checks are accepted for the event: please make checks payable to the "Grace Peshkur Foundation, Inc." For further information please call 631-656-6115 (Helen) or 631-588-0254 (Maureen). So please mark this in your calender now--tickets are going fast! Thank you for your generous support!

June 20th, 2004: Grace would like to give special thanks to her friend Carol Mazurik and a wonderful group of individuals whom got together to raise money through "Fit for Life" for the "Grace Peshkur Foundation, Inc." Afterwards, Princess Grace enjoyed being the guest of honor at a very elegant "High Tea" held at Carols' with her lady friends! Thank you so much Carol and Friends.

Another hardy thanks goes out to the members and friends of the K of C, Blessed Sacrament Council #11416. Early this month a "Night at the Races" was held at St. Joseph's of Lake Ronkonkoma with some of the proceeds going towards the foundation. A trip to Atlantic City is in the works at the present time as well. More news to come.

We just want to thank everyone for all of their continued help everywhere. There are so many things taking place for Grace right now that just overwhelm our hearts. Thanks for everything to everyone, we love you! Please continue to fight the war against EB and the ignorant scourge across the land. Thank you!!!!

We will add lots of new photos very soon......

June 18th, 2004: With a few complications and many trips to the hospitals and doctors, Grace shall be replacing her 14" G-tube with a small Mickey button. We all hope that it will make life a little more comfortable for her. Phase 2 is projected to take place later on in June if all goes as planned. Though Grace has had some problems with getting adjusted to having a tube hanging out her side, she does as well as she can and calls it "Tubey!" and Tubey has parties in Grace's belly. Other positive notes are that Grace has gained a few pounds, and it looks like it all went to her very pinchable cheeks. She is so precious and sweet.

In other news, The "Grace Peshkur Foundation Inc." has been established with the help of Mr John Ferro. This not-for-profit foundation has been put together to not only provide Grace with a healthy and happy quality of life but to make sure that a comfortable future is secured for her during her uncertain journey.

June 14th, 2004: We have established a not-for-profit fund for Grace. If it is within your ability, please send a donation to:

The Grace Peshkur Foundation, Inc., Michael and Karen Peshkur, 18 Brian Ave, Holtsville, NY 11742.

Please make the check/money order out to "The Grace Peshkur Foundation." All donations are tax deductible. We thank you for your generosity and kind support of this precious child.

May 2nd, 2004: Grace completed Phase I of her surgery to have a feeding tube emplaced on April 27th and came through in satisfactory condition. Shortly thereafter, she underwent an MRI to determine if there was a spinal problem: the MRI results were negative for a spinal problem (Thank God!). Grace is still in the hospital and is expected to go home sometime next week. There was trouble with the feeding tube, so when she goes home, she most likely will use a 12 hour pump to aid in her nutrient feeding. She is still experiencing a lot of pain. So please, keep her and her family in your prayers during this difficult time.

April 5th, 2004. We have reorganized the family album and added lots of new pictures; some from California and some from her Birthday party. Special Thanks go to Michael Peshkur for sending in the pictures. He also authored the captions! We have also added a beautiful poem written by Grandma Farley which was read at a Women's Enrichment meeting, at Holy Cross Parish on Saturday, April 3rd, 2004.The meeting talked about dreams. Please click here to read this beautiful poem, Weaver of Dreams. Please keep Grace in your prayers as she approaches her surgery date of April 27th, 2004.

March 29th, 2004. Happy Birthday to you, Happy Birthday to you, Happy Birthday Dear Princess, Happy Birthday to you... We are all so proud of Grace on her second Birthday. She had a surprise for all of us; she started to walk. She was getting ready for her big trip to California! More pictures will be added soon from her birthday party and her trip! Special Thanks to Aunt Kathy and Uncle Dylan for hosting the party in their beautiful new home! .

March 9th, 2004. Okay, we have added some new photos from a recently completed cruise and vacation. Please take a look at our family album. We also want to thank everyone we met at the EB Support Group meeting last week. Thanks for your continued support and prayers!

Feb 3rd, 2004. We have a batch of new photos that we have added to our family album. Please take a look. And don't forget to sign our guestbook! Thanks to all who have visited Grace's site, who offered prayers and support and who made favorable comments about our site.

Jan 14th, 2004. We have added a few more pictures to our Album. Please use the link below. Also, we would love to meet you at the next New York EB Support Group Meeting on February 29th, 2004, at 2:00 PM in Queens College. We will publish a room location as soon as we get it. Thanks to everyone who has made a donation to DEBRA, the national EB group. We would ask for continued donations to EB; however, we ask that you donate to our local New York EB group.When you make a donation to DEBRA, please note on the memo line of your check "For the New York EB Support Group." Our thanks and prayers go out to all of you!

Jan 6th, 2004. We have a new email address. If you would like to contact us, please click here. We have also added a couple of Christmas pictures to our photo album. So please take a look!

Dec 25th, 2003. Grace spent a beautiful Christmas Day with her family and friends. We promise to add more photos!!

Dec 11th, 2003. The family would like to thank Andy Weber and the wonderful folks at Johnson & Johnson for their donation of 1400 rolls of tape to the Peshkur's for Grace's dressings. She uses 2 to 4 rolls of special tape daily which is not covered by medical insurance.

The family appreciates any and all donations to Grace Peshkur. If you can help us out with any type of donations, please email us at MIKAREN916@aol.com.

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