Our Favorite Links! Listed below are some of our favorite links. We will add more as we find them. Some of the links discuss the rare condition that Grace has. If you select one of our links, you will be moved off of our web site. To return, please click the "back" button on your browser menu bar, top left.

www.debra.org --This is a great site that discusses DebRA (Dystrophic Epidermolysis Bullosa Research Association of America, Inc.). It is a voluntary, non-profit organization dedicated to finding a cure for Epidermolysis Bullosa (EB).

http://www.geocities.com/Heartland/Meadows/6473/ebinfo.htm --This is a site called Nicky's EB Info World. A courageous mother informs us about EB amd her son Nicky.

http://www.med.unc.edu/derm/nebr_site/ --This site is the national registry for EB, run by the Med School at the University of North Carolina. A great site for EB info.

http://www.BlessedSacramentKofC.org -- This is the Site of the Blessed Sacrament Knights of Columbus. Please refer to this site for information regarding the April 16th, 2005 fundraiser.

http://www.cincinnatichildrens.org -- This is the hospital where Grace is currently being treated. She would love to receive an email from you. Once you have gone to this website, look at the lower right portion of the page. Click on the "email" link and send a message to Grace and her family. She's in room PICU 611. Thanks for your thoughts and prayers.

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